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My son UPDATE: Surgery after July 15th

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UPDATE: Surgery postponed due to infection

Postby Surveyorshawn » Fri Jun 12, 2009 8:27 pm

Update from the hospital today: Benaiah had another pre-op appointment with the pediatric cardiologist today. They did bloodwork on him and found out that he has some kind of viral infection, and cannot risk doing the heart surgery now as it may cause that infection to enter the heart, so they have postponed the surgery until he is over the infection. We have to get bloodwork done again Wednesday (June 17th) to see how it is. The infection cannot be treated because it is viral and just has to run its course. This can actually be a good thing, because it gives us more time to financially prepare for the surgery and the time off from work for his recovery, as I will be able to work (hopefully for an additional 4 weeks, as we are requesting the surgery be done mid July now). I have included a few pics from today's visit:

This is Ben in the x-ray tube as they prepare to do his chest x-ray. We hate this part the most, as he screams terribly because of being confined in the tube and immobilized

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Here is another view of him in the tube:

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Here he is "helping" the ultrasound tech as she attempts to run the probe over his chest to view his heart. He was smiling at her and giving her "the look". He is such a flirt!!

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We also learned Wednesday that he is most likely going to require eye surgery when he becomes a year old (he turned 7 months old the 11th of June), because when he relaxes his eyes the both turn out toward the sides (the opposite of being cross-eyed). Most likely it would only lead to depth perception problems, but the surgery should prevent that.
Truth is like a lion; you don't have to defend it. Let it loose; it will defend itself. - St. Augustine
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Re: My son UPDATE: Surgery Monday June 15, 2009

Postby STILLHUNTER » Fri Jun 12, 2009 9:11 pm

My GOD watch over yall and protect yall !! PRAYS SENT!!
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Re: My son UPDATE: Surgery Monday June 15, 2009

Postby gtk » Mon Jun 15, 2009 8:36 am

I will keep y'all in our prayers. He is not a happy camper in the second pic for sure . :( I can't imagine the stress y'all are under...
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Re: My son UPDATE: Surgery Monday June 15, 2009

Postby deaner » Mon Jun 15, 2009 9:16 am

My prayers are with you.
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Infection is gone, ready to set another date

Postby Surveyorshawn » Thu Jun 18, 2009 12:26 pm

Ben had another Blood test yesterday and a checkup, and the viral infection is gone. We are awaiting word from the pediatric cardiology surgeon for a new surgery date now. Here are some pictures from his appointment:

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Waiting for the Doctor

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Getting the exam!

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Waiting for the nurse to draw a blood sample

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Awe! Mommy is trying to comfort him!

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Exhausted from all the poking & prodding
Truth is like a lion; you don't have to defend it. Let it loose; it will defend itself. - St. Augustine
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Re: My son UPDATE: Surgery Monday June 15, 2009

Postby gtk » Thu Jun 18, 2009 12:36 pm

Cute boy !

Glad the infection cleared up! Still praying for your son on the upcoming surgery.
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Re: My son UPDATE: Surgery Monday June 15, 2009

Postby deaner » Fri Jun 19, 2009 7:40 am

Prayers for the family and son.
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Re: My son UPDATE: Surgery Monday June 15, 2009

Postby jv » Fri Jun 19, 2009 8:27 pm

Will keep all in prayers
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Re: My son UPDATE: Surgery Monday June 15, 2009

Postby jalbrsn » Sun Jun 21, 2009 1:59 pm

Still praying for your son
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Re: My son UPDATE: Surgery Monday June 15, 2009

Postby Surveyorshawn » Sun Jun 21, 2009 4:20 pm

We are still waiting on a date for the surgery. I am really hoping it is going to be 3 or 4 weeks from now, because due to the economy, we have had to rely on some of the money we saved to survive. The only cost to us will be staying in the hospital for the 2 weeks and food while we are there, in addition the the effects of being out of work for those 2 weeks. We are NOT asking for donations, just prayer partners, and I know God has everything under control. It is kind of like Elijah wetting down the altar before asking God to burn up the sacrifice. It is still very stressful, and we definitely ask for your prayers as our faith is tested during this time.
Truth is like a lion; you don't have to defend it. Let it loose; it will defend itself. - St. Augustine
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Re: My son UPDATE: Surgery Monday June 15, 2009

Postby bigjohn » Sun Jun 21, 2009 7:30 pm

keeping all of ya'll in our prayers.
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Re: My son UPDATE: Surgery Monday June 15, 2009

Postby deadeyemojo » Mon Jun 22, 2009 10:26 am

yall will be in my prayers.
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Re: My son UPDATE: Surgery Monday June 15, 2009

Postby j2dirtracer » Mon Jun 22, 2009 8:31 pm

surveyor
I kinda know what you are going thru my girl has had 3 heart surgerys in the last 2 years. The 3rd on may 28th 2009 and Its gotta be the most stressful thing I have ever had to deal with, dont be like me and make it worse on yourself by worring and thinking what can i do. I am one of them dont worry about anthing people(but I worried myself to the point to where I thought I was gonna pass out) I am also one of them there has gotta be something I can do people. I learned (finally) the only thing i could do was let everybody else worry about it and "let God deal with it" so unless your the one doing the operation, all you need to do is pray.

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Re: My son UPDATE: Surgery Monday June 15, 2009

Postby Surveyorshawn » Tue Jun 23, 2009 7:32 am

Thanks J2. It is nice to hear from people who have been there before and can relate to what you are going through. How is your daughter doing now? What was her original diagnosis?
Truth is like a lion; you don't have to defend it. Let it loose; it will defend itself. - St. Augustine
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Re: My son UPDATE: Surgery after July 15th

Postby Surveyorshawn » Fri Jul 03, 2009 9:16 am

Talked to the nurse yesterday, and they are going to schedule Ben's surgery for a date after July 15th, which will help us out financially. The doctors still have to get together on the date, but I will keep you guys posted. Thanks for all the prayers!!
Truth is like a lion; you don't have to defend it. Let it loose; it will defend itself. - St. Augustine
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Re: My son UPDATE: Surgery after July 15th

Postby Smacko » Fri Jul 03, 2009 9:34 am

Thanks for the update..will continue ya'll on my prayer list
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Re: My son UPDATE: Surgery after July 15th

Postby bigjohn » Fri Jul 03, 2009 1:44 pm

keeping ya'll in our prayers. thanks for the update.
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Re: My son UPDATE: Surgery after July 15th

Postby Honey Bee » Sun Jul 05, 2009 6:40 pm

prayers will keep coming
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Re: My son UPDATE: Surgery after July 15th

Postby deaner » Mon Jul 06, 2009 8:42 am

Still thinking of Ben. May all of you receive a blessing and be lifted up.
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Re: My son UPDATE: Surgery after July 15th

Postby Surveyorshawn » Tue Jul 07, 2009 7:04 am

Ok, the hospital called yesterday. The surgery is scheduled for Wednesday, July 15. We will have to be the the day before for a preop exam. We don't really feel prepared (do you ever really feel prepared for stuff like this?), but Ben's breathing is getting worse, and he is getting weaker, so we definitely cannot wait any longer. Thank you guys for all the prayers, words of encouragement, PM's, and offers of support. Please continue to pray. I will keep everyone updated from the hospital. I may start a new thread for that, as this one is getting kind of long, lol. Again, thanks to everyone who has continued to remember us, stand beside us and stand in the gap for us.
Truth is like a lion; you don't have to defend it. Let it loose; it will defend itself. - St. Augustine
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Re: My son UPDATE: Surgery after July 15th

Postby jv » Tue Jul 07, 2009 7:36 am

Still in our prayers
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Re: My son UPDATE: Surgery after July 15th

Postby Surveyorshawn » Mon Jul 13, 2009 4:05 pm

Ben passed preliminary blood tests today, so we will be heading out in the morning to Tulane University Hospital for the surgery. The surgery will be Wednesday morning (July 15th). Please remember us in your prayers. This is as real as it gets for us. I know God is in control, but you can imagine all the fears we have as parents of an 8 month old having open heart surgery. Thank you guys for all the prayers you have already lifted for Benaiah and us.
Truth is like a lion; you don't have to defend it. Let it loose; it will defend itself. - St. Augustine
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Re: My son UPDATE: Surgery after July 15th

Postby deaner » Tue Jul 14, 2009 9:21 am

May Ben pass thru this surgery with flying colors and may you two--mother and father be made stronger as this is very trying time. May Ben and you receive the Lords blessing for strength and healing.
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Re: My son UPDATE: Surgery after July 15th

Postby Smacko » Tue Jul 14, 2009 12:45 pm

Still in prayers
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Re: My son UPDATE: Surgery after July 15th

Postby gtk » Tue Jul 14, 2009 7:08 pm

Praying for you son and the doctors treating him...
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