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My son UPDATE: Surgery after July 15th

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Re: My son UPDATE: Surgery after July 15th

Postby Surveyorshawn » Wed Jul 15, 2009 12:46 pm

We are at Tulane, & have been since yesterday. Ben had to be at the surgery center at 5:30 this morning. The nurse just came out (1:45). Ben is off the heart-lung machine & his heart it beating fine. They are closing his chest now, & are putting in pace maker wires because it beats erratically some because of the surgery. They said it will take about 2 more hours.
Truth is like a lion; you don't have to defend it. Let it loose; it will defend itself. - St. Augustine
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Re: My son UPDATE: Surgery after July 15th

Postby gtk » Wed Jul 15, 2009 1:06 pm

keeping on praying... hope y'all soon have all this behind you.>!
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Re: My son UPDATE: Surgery after July 15th

Postby deaner » Thu Jul 16, 2009 9:12 am

This is great. we are happy things went good and hope of daily improvement. Keep praying.
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Recovery update

Postby Surveyorshawn » Thu Jul 16, 2009 2:55 pm

The doctors say Ben is doing really well. Today was really hard, because they did not give him as much pain medicine to make sure he could respond to stimuli well, move well, etc. He cried a lot, and it was really tough on us, be we understand that it is necessary. I wish I could take his pain from him. On the bright side, he is progressing well enough that he may go to a room tomorrow or Saturday. He has 2 nurses and a respiratory tech assigned to him, and at least one of the nurses is in his room at all times. Every time we have seen him, they are constantly working on him or tending to him. The surgery appears to have fixed everything. They actually repaired 3 holes in his heart (VSD, ASD, & PDA) moved one artery (both were on the right side instead of one on each side like they are supposed to be), and enlarged his left aortic artery on both sides of the valve. They gave him pain medicine before we left a few minutes ago. Here are a few pics from the PICU from yesterday & today. The first pic is now my screen saver on my laptop.

Daddy's little buddy!
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Mommy reading to her little man
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Benaiah & his little lion
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Caressing his ear soothes him
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All his tubes
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Medical staff conferring over him
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Stealing kisses!
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Right before they gave him pain medicine
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Mommy's hands praying over little Ben as they examine him
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Re: My son UPDATE: Surgery after July 15th

Postby gtk » Thu Jul 16, 2009 4:53 pm

I have to say, those pics makes my eyes water a little bit.. I cannot fathom what you & your wife are going thru, not including little ben.

I'm so glad he's outlook is good, and praying that the worst is behind him now..
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Re: My son UPDATE: Surgery after July 15th

Postby mt » Fri Jul 17, 2009 6:05 am

Same here GTK. Will keep all in my prayers.
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Re: My son UPDATE: Surgery after July 15th

Postby jalbrsn » Fri Jul 17, 2009 4:54 pm

Still praying for yall
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Re: My son UPDATE: Surgery after July 15th

Postby Honey Bee » Sat Jul 18, 2009 12:03 pm

MY PRAYERS WILL KEEP COMING
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Re: My son UPDATE: Surgery after July 15th

Postby jv » Sat Jul 18, 2009 9:16 pm

Prayers for little Ben and for his Mom and Dad also
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Re: My son UPDATE: Surgery after July 15th

Postby deaner » Mon Jul 20, 2009 7:25 am

Very good pictures and our family continues to keep all of you in our prayers. The pictures are so detailed I suppose since my picture taking needs improvement. Stay happy and keep smiling there are better days coming.
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We are home!!

Postby Surveyorshawn » Fri Jul 24, 2009 7:24 pm

BENAIAH IS HOME!!!!!!!!!!!!!!! It is absolutely amazing to me that he has recovered so fast! He was discharged yesterday, one week and one day after having open heart surgery! He had a followup with his regular pediatrician today, and we will go back to New Orleans Monday for a followup with the cardiologists at Tulane. He rarely acts like he is in any pain at all. If I had just had my chest sawed open a week ago, I would still not be moving & would be on major pain meds!!! Here are some pics for you guys. Thank you so much for praying for him!! Please continue to pray for a complete recovery. Unless something changes, he will have eye surgery in November or December. I will post his complete heart diagnosis and what they did soon.

Playing with his toes after they took out all the tubes and wires
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Benaiah, Mommy, and Daddy
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Benaiah's medical team
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Leaving the hospital!
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Mommy loading him in the truck!!:)
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Happy to be going home!!!
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The sign of a good book....how it feels on your gums!!
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Home at last!!!!:) :) :)
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Dr's visit today
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Who's that cutie in the mirror?
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Re: My son UPDATE: Surgery after July 15th

Postby j2dirtracer » Fri Jul 24, 2009 9:02 pm

:2TU:
Im just a dirtbag that lacks the necessary skills to hunt like a real hunter, so I just sit in a tree for a few hours in the morning and evening.
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Re: My son UPDATE: Surgery after July 15th

Postby merrillcd_mem » Sat Jul 25, 2009 8:02 pm

That's great news!
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Re: My son UPDATE: Surgery after July 15th

Postby jv » Tue Jul 28, 2009 7:30 pm

Thats greats news..........Ben will still be in our prayers as well as his parents
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Re: My son UPDATE: Surgery after July 15th

Postby bob » Wed Jul 29, 2009 6:43 am

Thanks be to God
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Re: My son UPDATE: Surgery after July 15th

Postby dalbrsn » Sat Aug 01, 2009 9:01 pm

Great news
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Re: My son UPDATE: Surgery after July 15th

Postby Surveyorshawn » Thu Aug 20, 2009 3:08 pm

8/18/09
Guys, Benaiah's 9 month checkup was today. The pediatrician noticed that the soft spot on his head is protruding a bit, and his head seems a little swollen or enlarged. He is having a CAT scan in the morning (Wed. Aug 19) at 8 am. Please pray for him. Of course we are really worried!
8/19/09
Ok, I am about to show my ignorance in regard to medical things, but I will attempt to explain what the dr told us today. There are basically 3 areas that hold fluid in the brain area, one on each side, and one in the middle (under the baby's soft spot). The CT scan showed that both of the ones on the side are in the normal size range, but on the very upper end of the spectrum. The one in the middle is enlarged beyond the normal range, but not tremendously. He has no signs of infection, or any other symptoms at all besides the apparent swelling. They said just to watch him, & notify them if he develops any symptoms or if the soft spot swells any more. He has a followup appointment in a month to measure his head again. Although his soft spot is protruding some, it is still very soft & spongy. The dr said we should worry if it becomes harder similar to a trampoline. He said it could be something as simple as a duct that is stopped up, temporarily pooling fluid there. Of course, no parents fully relax until they are certain that nothing is wrong, and no one wants to hear "let's just watch him and see what happens", but it is better than hearing that something serious is definitely wrong! Thank you guys for all your prayers!!
Today:
Just stopped by the house to get some things & write up instructions for my employees for tomorrow. Benaiah's regular Dr was out yesterday, so an on call dr is who made the ruling to wait & watch him. While I was at work today, his regular dr apparently viewed his record & the ultrasound reading & called Jennifer & told her to get him to the emergency room asap. She tried to call me, but I am working in a very rural area with no cell service. At the ER, the ER dr looked at him & said they need to medivac him to Tulane in New Orleans (same place he had his heart surgery) immediately to the neurologist there. The swelling in his brain is causing other problems, but I am not sure what they all are yet. Jennifer is still at the local hospital & I am about to leave to get her & head to New Orleans (another 2 hours away). I will not be able to post once I leave, as I will not have internet access, and I have asked Rev to please post updates for me. If anyone wants my cell to text or call, PM him. Thanks to all of you for praying so much for us!
Truth is like a lion; you don't have to defend it. Let it loose; it will defend itself. - St. Augustine
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Re: My son UPDATE: Surgery after July 15th

Postby Smacko » Thu Aug 20, 2009 4:04 pm

Still sending prayers your way...
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Re: My son UPDATE: Surgery after July 15th

Postby jv » Fri Aug 21, 2009 7:26 am

Y'all still in our prayers
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Re: My son UPDATE: Surgery after July 15th

Postby deaner » Fri Aug 21, 2009 8:22 am

It is easy to love a child and your child is receiving lots of love and prayers from my family and friends. I keep my organization members posted on condition and I also request prayers. They are very interested in the progress of this child as we all know the family and friends suffer also.
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Re: My son UPDATE: Surgery after July 15th

Postby gtk » Fri Aug 21, 2009 8:54 am

Still have him in my prayers !
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Re: My son UPDATE: Surgery after July 15th

Postby ajlineman » Sat Aug 22, 2009 3:55 pm

It tares me up to see you all going through this please know that me and my two boys pray for yall every night, please keep us posted when you get a chance
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Re: My son UPDATE: Surgery after July 15th

Postby Surveyorshawn » Sat Aug 22, 2009 4:56 pm

We are back from Tulane in New Orleans. The neurologist said that though the ventricles in Benaiah's brain are on the large end of normal, they are still in the normal range. He did not see anything on the CT scan that would indicate that abnormal pressure on the brain was causing one of his pupils to be larger than the other (his right pupil is larger than the left one), and that it was an opthamalogical (sp) problem (eye problem). He said our normal pediatrician should monitor it, & we should return with any significant changes. An opthamologist came in & examined Benaiah next. She said nothing was structurally wrong with his eyes, and suggested abnormal pressure on the brain from a fluid buildup could be the cause (exactly the opposite diagnosis that the neurologist had). It was really frustrating that they could not agree, so I suppose we are indeed forced to sit and wait. The fact that one pupil is slightly larger than the other in addition to the bulging fontanel (soft spot) is why we were sent to Tulane. That is generally a very bad sign. In addition to those specialists, we also saw a geneticist, who drew blood and is currently running what is called a microarray test, which tests for every known genetic condition. We should have the results in about 2 weeks. This was done because several genetic syndromes are associated with congenital heart defects and eye problems. He has a local opthamologist appointment on Sept 9. This appointment was already set to potentially set up his eye surgery in Oct or Nov. With all said and done, I would rather have driven all the way to New Orleans and stayed for 2 days only to be released like we were, than to have to report back that Benaiah definitely had a serious problem like we thought!! It was worth the trip to be safe and have peace of mind!! Thank you guys so much for praying, and I will post the results of his tests as soon as we get them.
Truth is like a lion; you don't have to defend it. Let it loose; it will defend itself. - St. Augustine
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Re: My son UPDATE: Surgery after July 15th

Postby Honey Bee » Sat Aug 22, 2009 6:09 pm

Prayers will keep coming
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Re: My son UPDATE: Surgery after July 15th

Postby deaner » Mon Aug 24, 2009 8:23 am

I have a close friend that has prayer contacts all over the world and we have asked her to pass along the request for prayer. It is peculiar that when we really need prayers we know who to go to to make that request. I have a neighbor lady that has lots of contacts also. What I am trying to say with no luck is that some of us may not make praying our usual habit and I say that is okay but we really need your prayers now. It is not my place to make judgement on others, I have been in most situation myself and seen it all but now I am different but I see myself as no better than anyone. I hope this came out alright.
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